I haven’t posted a personal message in a few days so here it is. Monday I didn’t have much going in the way of appointments and such but I spent alot of time figuring out this non-profit deal. Lots of paperwork is all I can say, but I will get through it. Tuesday I had the privlage of having a pelvic ultrasound to check for my friends we call ovarian cysts. I don’t have the results back yet, but I know its in there. I am not sure what we are going to do with it by way of treatment. It might be a sit and wait until I am fully healed from the transplant. I’ve had them before transplant but stopped for a while (probably because I was too sick to ovulate). I know you all wanted to know my womanly events, but hey this tells the whole story and I am not going to hide much. This past week I also have been getting visits from my ulcer, but after talking to a different transplant doctor today I think if I drink milk or have yogert with my meds in the morning that might help alot. This morning I had a biopsy that went really well!!! I was afraid after the last few that I had too much scar tissue built up and it would be difficult all the time. So either it was the doctor’s touch or the popcorn I had last night that opened up my veins so it was smooth sailing. I sold a few pairs of mittens in the cath lab and handed out information to the clinic about them so I am hoping more get sold. Tomorrow I plan to go to the Second Chance for Life support group meeting and bring some mittens but I also really want to visit a young adult LVAD patient in the hospital.
Now this brings me to what is normal to an abnormal person. I was talking to my therapist (yes I have one and I have a right to need one with all the crazy stuff I am going through so there). ANYWAY!!!! I was saying to her that I just don’t know what is normal for a normal person (activity wise) nor do I know what normal is for a transplant patient. All I know for normal is being sick so anything beyond that is new and limitless for me. I always assumed that normal people can go and go and go so I just expect that I should be able to do that. More specifically, my physical wounds are healed so I don’t get that internally there maybe more healing that could hold me back. I have wanted for so long to be like everyone else not knowing what everyone else is like. I have this pressure on myself not to waste a second of my life. For my donor, the donor family, my family, my friends, and the whole community that supported me. I owe it to everyone to be super me, no? Well it is my task to take inventory of all the stuff I do in a week and see it on paper. My misconception with things is that because I don’t have a full time “official” job that I am not working. I have to be ok with not having that “official” job and know that my job is; cardio rehab, clinic apts, biopsies, therapy, support groups, blog, cook book, non-profit, etc. OH yeah and personal time, being a wife, daughter, sister, friend, mommy to my animals. There might need to be a while area of therapy devoted to transplant patients. If there is and I don’t know about it TELLLLL MEE!!!!
Ok I need a break from blogging for now. I got myself into a whirlwind….BUT I am going to post a pic from Thanksgiving of my me surprising my grandma. I visited her while she was making a Solvenian treat we call foncences (SP?). Adorable right!!?