copyright tom petty, waiting is the hardest part
So we had to move again (still in the ICU) due to staffing issues (annoying).
Today after a good night of sleep :), Maria felt pretty good this morning for a bit, but quickly became tired and gradually felt worse as the day went on.
Visitors today were Lizzy brought by Jess (Maria’s co-worker who is babysitting Lizzy), Mary and Roger, and Bill a 2-year transplant survivor whom she meet through the U of MN transplant group. Lizzy perked her up for a few hours, so that was nice (Thank you Jess for brining her and taking such good care of her). Bill is a big inspiration to Maria as he has almost not made it several times but is so happy and full of joy now. Thank you Roger and Mary for staying with Maria while I got out for a while. She enjoyed your company.
Her health status remains about the same. They leveled her off on the Milrinone. They tried to go up another notch (which would have bumped her up to a 1A) but her heart responded with some funky rhythms (in other words, her heart said “oh no you didn’t!”. So she will likely stay at this dose and hopefully she starts feeling better. If they decide to stay at this level, and she starts feeling better they will move us to 6C (again) and take the catheter in her neck out. This is nice b/c its out of the ICU but is a shared room. Her return to home is still in question, we would like to get home sooner but if she goes home she will have to be in a pump which has to be oked through insurance first which may take some time.
For the next day or two, we asking for no visitors. Hopefully that will change or we will be coming home. We love reading your thoughts on caring bridge! So keep that up!